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SalaryThe Patient Education Liaison (PEL), Rare Diseases, is part of the Patient Services, Rare Diseases organization and is a field-based role. The PEL is accountable for providing education to patients and their caregivers/families to ensure they have patient-relevant disease information as well as an appropriate understanding of the clinical profile and administration recommendations of Ipsen products. Their role may at times also include broadly educating on complex reimbursement issues and requirements necessary to initiate and maintain therapy. This team embodies Ipsen’s approach to working with patients for patients.
This is a complex position requiring coordination with other Ipsen teams (Medical, Clinical, Communications and Patient Advocacy, Regulatory, Compliance, Marketing, Value and Access, Care Coordination Team, and other field-based colleagues) to facilitate alignment and to ensure patients are supported throughout their journey in a most appropriate, compassionate, ethical and compliant way.
The Patient Education team operates under the guidance of rigorous SOPs requiring close attention to detail. The PEL is fully accountable for compliance with all laws, regulations and policies that govern the conduct of Ipsen activities. #LI-Remote
Main Responsibilities & Job Expectations:
Lead local efforts to provide patient-relevant disease-state and treatment education to patients and their caregivers/families, and their communities in the assigned geography.
Lead local efforts to engage with and facilitate Patient Education via individual family meetings, group meetings, and patient organizations and communities in the assigned geography. Assist with these efforts at the region and national levels.
Provide, proactively and in response to requests, relevant, approved patient-oriented disease/product information.
Organize and/or participate in patient and patient group engagement in a variety of settings including one-on-one settings, meetings, and conferences of all sizes, and using a variety of communication media.
Facilitate, attend and/or staff patient community events.
Organize and facilitate patient speaker programs using contracted speakers and following guidelines and SOPs.
Respect the privacy of patients and their caregivers/families and manage all personal information in accordance with all laws, regulations, and policies.
Facilitate and/or deliver educational services to patients, caregivers, patient organizations.
Help patients and caregivers connect with Ipsen Patient Services resources to address complex reimbursement issues, insurance options and limitations, benefits, and requirements necessary to initiate and maintain therapy.
Collaborate with other field roles, including Area Disease Managers and Clinical Science Specialists, to respond to requests appropriately and efficiently and to coordinate patient disease and product education activities.
This is not a promotional selling role and is not accountable for delivery of organization sales goals.
Act in full compliance with all laws, regulations, and policies.
Utilize only approved resources and messages to perform function responsibilities.
It is the responsibility of all company employees who receive information pertaining to a possible adverse event (AE) or serious adverse event (SAE) to understand that the appropriate clinical and regulatory personal must be notified of the event promptly upon receipt regardless of severity
Knowledge, Abilities & Experience:
Bachelor’s degree in nursing or equivalent required or certified genetic counselor
Master’s degree and/or relevant certifications a plus
Active RN license required or certified genetic counselor (note that this role does not involve the practice of direct patient care)
5+ years of prior Pharma/Biotech experience in specialty products, including interacting with providers, patients, and caregivers.
3+ years’ experience in designing and or delivering patient and/or consumer-oriented health education.
Rare-disease experience a plus
Fluent in English
Key Technical Competencies Required:
As a leader focused on Rare Diseases, the incumbent is expected to have, develop and apply the following functional competencies to a medium-to-advanced level of proficiency: Market, Disease and Product Knowledge, Customer Understanding especially Patient, Operational Planning, and Customer Engagement
Strong clinical acumen
Excellent communication and presentation skills and ability to navigate difficult conversations.
Strong understanding and ability to lead within the life-sciences compliance environment.
Demonstrated ability to solve problems, seek answers and drive to solutions.
Proven track record for consistently meeting or exceeding quantitative and qualitative goals.
Excellent understanding of patient-literacy concepts and ability to communicate complex scientific/medical information in patient-friendly language.
Demonstrated passion for patients.
Domestic travel is required, +/- 60-75%. Occasional international travel may be required
Working location assignment: Remote
The annual base salary range for this position is $112,500 - $165,000
This job is eligible to participate in our short-term incentives program as well as our long-term incentives program.
At Ipsen we are proud to offer a comprehensive employee benefits package, including 401(k) with company contributions, group medical, dental and vision coverage, life and disability insurance, short- and long-term disability insurance, as well as flexible spending accounts. Ipsen also provides parental leave, paid time off, a discretionary winter shutdown, well-being allowance, commuter benefits, and much more.
The pay range displayed above is the range of base pay compensation within which Ipsen expects to pay for this role at the time of this posting. Individual compensation within this range depends on a variety of factors, including, but not limited to, prior education and experience, job-related knowledge and demonstrated skills.
