Associate Director, Patient Advocacy

Vigil Neuroscience is the world's first microglia-focused therapeutics company. Our purpose is clear: to treat rare and common neurodegenerative diseases by restoring the vigilance of the microglia, the sentinel cells of the brain's immune system. We are utilizing the tools of modern neuroscience drug development across multiple therapeutic modalities to rapidly deliver precision-based therapies to improve the lives of patients and their families. 

We seek an energetic, passionate, and seasoned patient advocate to join our rapidly growing company committed to patients and their families. The Associate Director, Patient Advocacy will support development and implementation of the Patient Advocacy strategy across Vigil’s programs.  Working closely with and reporting to the VP, Patient Advocacy, this candidate will be responsible for supporting internal operations and project management as well as supporting/leading proactive external engagement with key Patient Advocacy groups in areas of high unmet need within the patient community. The candidate will help to build the function internally while developing and/or strengthening relationships with global, external stakeholders in rare and particularly in common neurodegenerative diseases with a focus on adult early onset populations. The candidate will be an integral member of cross functional teams and a key contributor to ensure Vigil is the partner of choice with the community through active external engagement and relationship development.

Key Responsibilities:

•  Execute on and further develop the Patient Advocacy strategy.
• Support and further develop insight generation to ensure patient and caregiver voice are consistently integrated.
• Monitor and trials@vigilneuro.com and support appropriate and compliant responses.
• Assist in managing legal/medical and regulatory review process.
• Assist in managing a budget including the submission, and tracking of sponsorship & membership requests through internal review, contracting, and payment.
• Assist in supporting and organizing Patient Advisory Boards and Councils as needed for support of clinical programs and key insight gathering.
• Serve as an internal support for events where we invite the patient community to Vigil to share their experiences, including contracts and meeting operations.
• Represent the company at key Patient Advocacy group conferences, medical congresses, and other patient community meetings.
• Ensure compliance with corporate policies and procedures, as well as applicable laws and regulations.

Candidate profile:

• 7+ years of experience in the pharmaceutical industry or relevant experience in non-profit advocacy organization; a mix of both is a real plus.
• Experience in neurodegeneration required with adult-onset neurodegeneration a plus.
• Experience in common neurodegenerative diseases required with rare disease a plus.
• Experience in clinical trial and drug development a plus.
• Excellent project management, communication (oral and writing) and interpersonal skills are required.
• Ability to manage and foster complex, cross functional internal and external relationships as well navigate ambiguous situations.
• Ability to travel 40% (sometimes globally) on a regular basis, as required.
• Knowledge of current regulatory requirements and guidelines governing Patient Advocacy as it relates to clinical research and drug development process.
• Ability to multi-task and work in a fast-paced environment.
• Proven ability to work independently.
• Local candidates preferred.

#LI-DNI

Powered by JazzHR